Story
π Why Iβm Fundraising
I am raising funds for the Lymphangiomatosis and Gorham's Disease Alliance (LGDA) after my son was diagnosed with a complex lymphatic anomaly (CLA) β a rare and often misunderstood condition. Like many families affected by rare diseases, we quickly learned how vital research, awareness, and patient support truly are.
The LGDA provides education, advocacy, and hope to patients and families worldwide affected by complex lymphatic anomalies (CLAs) and lymphatic malformations (LMs), while also supporting research into better treatments and outcomes.
π§Έ What Iβm Doing
I create handmade sock monkeys, each one sewn with care and made to be completely unique. These sock monkeys are sold via eBay UK, and 100% of the proceeds are donated to the LGDA through this JustGiving page.
Every monkey sold helps turn something handmade and comforting into something powerful β support for CLA and LM research.
Purchase your Sock Monkey here:
Freya - https://ebay.us/m/ibVsre
Lyra - https://ebay.us/m/c0zJbK
Amelie - https://ebay.us/m/P0UdD6
Elowen - https://ebay.us/m/MZeOVb
Arlo - https://ebay.us/m/EcIUz5
Jenson - https://ebay.us/m/ZlItJX
Rafe - https://ebay.us/m/TZcjO0
Kian - https://ebay.us/m/DTjVRE
π¬ Where the Money Goes
100% of the money raised from the sale of this Sock Monkey goes directly toward supporting research through the LGDA (Lymphangiomatosis and Gorham's Disease Alliance - www.lgdalliance.org). Funds contribute to the $25,000 Young Investigators Research Award, which is granted each year to an early-career researcher studying complex lymphatic anomalies and lymphatic malformations.
Research changes lives β and for CLAs and LMs, it starts with opportunities like this.
πΈ How Donations Work
β’ The LGDA is a non-profit 501(c)(3) charity registered in the USA
β’ As the sock monkeys are sold via eBay UK, I am unable to use eBayβs charity function
β’ Instead, all funds are donated through JustGiving, which is directly linked to the LGDA
β’ Donations from sock monkey sales will appear as offline donations
β’ To reduce international banking fees and ensure more of your money reaches the charity, payments will be made to the LGDA quarterly
π¦ Who This Fundraiser Is Open To
Due to shipping costs, the sale of handmade sock monkeys is currently open to UK residents only.
However, anyone, anywhere in the world is very welcome to support this fundraiser by:
β’ Making a donation directly via this JustGiving page
β’ Sharing the fundraiser to help raise awareness of complex lymphatic anomalies and lymphatic malformations.
Your support β whether through a purchase, a donation, or simply spreading the word β is deeply appreciated and truly makes a difference π
π Why Your Support Matters
Rare diseases receive only a small fraction of research funding, yet thousands of families are affected. Your support helps:
β’ Funds vital research
β’ Raise awareness of CLAs and LMs
β’ Support families navigating life with these diseases
Every sock monkey purchased β and every donation made β truly makes a difference.
Thank you for supporting this fundraiser, for believing in research, and for helping bring hope to families like mine.
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