Thanks for taking the time to visit this JustGiving page

Im well aware I've spent many years of trying to raise awareness of this brutal disease and try and raise money for research. And conscious that i keep needing to do something over and above the previous years to give this disease the kind of platform MND gets. The platform it deserves.

Last September ('25) i got injured. I spent months out and needed a operation on my knee to help my recover. During that time i committed that if i ever did get back i would go bigger and further than ever to generate that awareness. With October 2026 marking my 50th year on the planet, and the 12 month countdown to the big 5-0 in 2027 i would string together 5 ultra ultra challenges to try and go the Ultra extra mile (and hopefully get my friends to raise Ultra awareness). The fact Archie Goodburn has raised the issue about young people with Brain Cancer not having hope can only be a good thing. To give a bit of my time in the run up to a milestone DIPG children cant hope to achieve is the least i could do to mark the occasion. Therefore i've committed to 5 events:

1. 10/10/26 - The Howgills Round - 40m 11.5ft elevation

https://gofar997.wixsite.com/gofar/harvey-howgill-tops

2. 22/05/27 - The Old Country Tops - 37m 10kft elevation

https://achille-ratti-climbing-club.co.uk/?page_id=62

3. 03/07/27 - Endure24 - hopefully further than ive ever run (>200km/ 125m)

https://www.endure24.co.uk/endure24-2027/endure24-leeds-2027/

4. 23/07/27 (just 3 weeks later) - Become one of the few people to run Lakeland 100 5 times (all for Abbies Army)

https://lakeland100.com/thelakeland50100/

5. 09/10/27 - Joss Naylor 50 (5 days after my 50th birthday)

https://jossnaylor.blogspot.com/p/blog-page.html

Phoebe's story is below, which is a typical case and every Parent's worst nightmare.

Phoebe's dad Mark is a friend of mine. She would have been 16 next April but regrettably she will be always 8

In 2019 she was diagnosed with a DIPG a highly aggressive inoperable brain tumour. There was a rapid onset of symptoms in the space of a day with no prior warning. Phoebe passed away on 23rd November a mere 3 months after diagnosis. There is no cure.

The disease is brutal, super aggressive with the cancer wrapping around the healthy brain stem, restricting movement, speech, sight, and the ability to swallow and eventually breath. It is truly horrific. What makes it even more shocking is that treatment protocols have not changed in 60 years. The Astronaut Neil Armstrong's daughter Karen received the same diagnosis as Phoebe in 1962. They were offered the same treatment as Phoebe -  Radiation. It would provide a few months at most of improved symptoms but Mark and family were told to go home and make memories. In this day and age this cannot be right. Every 9 days another family in the UK is destroyed by this diagnosis and the absence of hope.

Abbies Army are a charity committed to raise money for research to find a cure for DIPG - so other families dont have to endure what their families went through. More details are in the infographic in the gallery.