We are deeply saddened to share that our dear Umash has passed away. Umash was a kind, courageous, and inspiring soul who touched the lives of everyone who knew him.

He lived with Hereditary Spastic Paraplegia (HSP), a rare condition that brought many challenges, yet he did not let these challenges stop his love and passion of driving and being independent, tirelessly facing them with strength, dignity and who can forget his smile. HSP is a condition that not only Umash faced, but also affects Bhadresh his elder brother and Our Mum Kokila too.

In his memory, we are raising funds for the HSP charity, an organisation dedicated to supporting those affected and advancing vital research. Donating is a way to honour Umash’s life and continue the fight for a future where others living with HSP can find hope and help.

Any donation little or large will make the world of difference for everyone who's affected by HSP (Hereditary Spastic Paraplegia)

Thank you

The Parmar Family