We are taking part in Cure EB's Butterfly 10k Run on 24th September, to help find a cure for this terrible disease.

My lovely cousin has this disease and we are well familiar with the challenges that they face everyday, especially little kids.

Children with the condition are often referred to as 'Butterfly Children' as their skin is said to be as 'fragile as a butterfly's wings'.

Please support us in any way you can, so that a cure can be found to enable children and adults to fly free from the pain of EB and have the blisters and wounds stop.

Thank you so very much!

George & Vana