Hi everyone!

On 25th of May I’ll be running the Edinburgh Half Marathon for the first time

I’m taking on this challenge not just for the run, but to raise awareness and funds for Myhre Syndrome.

Myhre syndrome is a very rare, degenerative, genetic condition that my nephew was diagnosed with last December. There are less than 200 confirmed cases worldwide and research is very limited.

More information can be found here:

https://www.myhresyndrome.com/

Any donation, big or small, would mean a lot—and even just sharing the link is a huge help!

Thanks so much for your support and encouragement. Wish me luck as I tackle those 13.1 miles!

All the best,

Veronica