SUDEP Action are the only UK charity supporting and working alongside those whose loved ones have died suddenly from an epilepsy-related death.

SUDEP stands for Sudden Unexpected Death in Epilepsy. It’s when someone with epilepsy dies without warning and the post-mortem fails to establish any other cause of death.

There are five key strands to our work:

Providing info on SUDEP (Sudden Unexpected Death in Epilepsy) to significantly reduce epilepsy risk

Bereavement support when someone has died

Driving research to prevent future deaths

Capturing data across the UK & internationally through our Epilepsy Deaths Register

Creating a community to bring about change