Story
I’m running Ten, 10K races this year to raise money for REVERSE RETT, because my friends grandson has been diagonised with Rett Syndrome Rett Syndrome is more common in girls but although rare, boys can also have it.
Reverse Rett
RCN 1136809
www.reverserett.org.uk
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/
The UK Rett Syndrome community is at a pivotal moment at the moment with two clinical trials of gene therapies underway.
Much is required of our small, rare disease organisation at this time. At Reverse Rett, we are packing a mighty punch in accelerating disease-modifying treatments for Rett syndrome but we need your support to keep our work going.
