Hi! We’re Katie and John. In 2022, we welcomed our beautiful baby girl, Primrose, into the world — a little girl with a very special heart.

Katie’s pregnancy was smooth (apart from the usual sickness!) until our 20-week scan. We were so excited to see our baby again, never imagining anything could be wrong. But the room went quiet — and in that silence, our hearts sank. Deep down, we knew something wasn’t right. With three healthy children already, we never thought we’d hear the words that would change our world forever:

“I’m so sorry, your baby’s heart is not compatible with life.”

“Your baby has a very serious and complex heart condition.”

In that moment, our world shattered. We were offered a termination — but we knew we wanted to fight for our baby.

In August 2022, our miracle girl Primrose arrived — full of life, with a great set of lungs, and quickly known by doctors and nurses as “feisty”!

Primrose was diagnosed with Hypoplastic Right Heart Syndrome, meaning only half of her heart functions properly. At just six days old, she underwent her first open-heart surgery, and again at five months. Her next surgery is planned for 2026.

Despite everything she’s faced, Primrose lights up every room she enters. She leaves her sparkle wherever she goes, and everyone who meets her falls in love with her cheeky grin. She continues to defy expectations and live life to the fullest.

If Primrose’s condition hadn’t been detected at that 20-week scan, she would not be here with us today. Did you know —- only 53% of cases are diagnosed during pregnancy, and around 1,000 newborns leave UK hospitals each year with undetected heart conditions.

That’s why Tiny Tickers means so much to us. They work tirelessly to train sonographers across the UK to spot heart conditions early and to support families like ours through their journeys.

Early detection is vital, to ensure babies get the best start to life when they have special hearts. Early detection saves lives!

In February 2026, we’re taking on a huge challenge! 💪❤️

We’ll be walking 100k to raise money for Tiny Tickers and all the incredible heart warriors out there! To make things even more fun, we’ll be dressed up in costumes — so keep your eyes peeled for us along the way!

If you spot us, give us a wave, a cheer, or even better — share our story! Every share helps us reach more people and get closer to our fundraising goal.

We’ll be revealing our full route soon so you can follow our journey and track our progress.

Stay tuned — and thank you so much for your support! ❤️

If you would like to read Primrose’s full story, you can here —— https://www.tinytickers.org/2023/08/02/my-babys-heart-defects-primroses-story/?fbclid=PAdGRleAOCk_FleHRuA2FlbQIxMQBzcnRjBmFwcF9pZA8xMjQwMjQ1NzQyODc0MTQAAachUHBNq--xu6Kvj1nrqS0XMouyj5szsdmHBz3b98p1RrDSGZd8RR4CVxjWjQ_aem_LZ4nUaCF2SGGEk1qx8H_Jg

If you would like to follow our 100k walk on social media, you can here —- https://linktr.ee/ktharvey_