Aup everyone, I was diagnosed with SMA type 2 when I was 18 months old, life has been crazy but after many years there’s finally medication out there BUT it cost a lot of money for the NHS, so if there one thing I can use my platform for is to raise awareness of the Sma disability and try to raise as much money as possible!

Established for over 40 years, SMA UK are a charity that supports, campaigns and advocates so that everyone affected by Spinal Muscular Atrophy can access the best care, services and treatments, and benefit from continued research. We offer adults, young people, parents, relatives and friends emotional support, practical advice and guidance from our experienced team and provide reliable health and social care information about SMA. We also provide and distribute free multisensory toy packs for infants who are diagnosed with SMA.