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Tommy and Eddie White's fundraiser for Reverse Rett

Tommy and Eddie White is raising money for Reverse Rett

Team: Team Reverse Rett Manc Runners

adidas Manchester Marathon 2026 · 19 April 2026 ·

Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

The White brothers are running the Manchester Marathon for Reverse Rett and for our sister.

Rett syndrome is a rare neurological disorder that mainly affects girls and severely impacts their ability to walk, talk and use their hands.

Right now is a really important moment for the Rett community. There are two gene therapy trials underway, and for families like ours, that brings a level of hope we haven’t felt before. These trials don’t just happen on their own — they need support, coordination, and a lot of behind‑the‑scenes work.

That’s where Reverse Rett comes in. They’re a small charity, but they’re driving real progress. They push research forward, support families, and help make sure promising treatments don’t stall. Their work genuinely matters, and we want to help keep it going.

Every mile we run is for our sister (Olivia), and every donation helps bring us closer to a future where Rett Syndrome has real, effective treatments.

Thank you for supporting us — it means more than you know

Donation summary

Total
£6,560.35
+ £1,047.50 Gift Aid
Online
£6,560.35
Offline
£0.00

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