WHAT IS WILLIAMS SYNDROME?

Williams Syndrome (WS) is a rare congenital disorder that occurs randomly in approximately 1 in 18,000 births in the UK. It is non-hereditary (unless a parent has WS), caused by a tiny new deletion on chromosome 7.

Williams Syndrome is usually associated with a number of health issues, including cardiac problems; learning difficulties; behavioural, social and sensory difficulties; and mental health problems – particularly anxiety.

WHAT DOES THE WSF DO?

The Williams Syndrome Foundations supports people with Williams Syndrome and those who love, care for and educate them.

HOW WILL YOUR DONATION HELP?

Your support will help to connect our families at a national weekend convention in 2025, bringing them together to share support and also to connect with experts in WS who offer a series of presentations addressing the challenges and providing advice which help families to advocate for their children. Your support will also help us to provide respite breaks for our families through specialised care breaks, provide support groups, provide regional events for families, fund research and add to our resources for our families and the professionals who support them.