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This is our son Eddie. He is a cheeky four year old who loves ice cream, Paw Patrol and chasing his sisters around the kitchen table.

Recently Eddie was diagnosed with an incurable genetic condition called Hunter Syndrome and since then he has been receiving treatment at Great Ormond Street Hospital.

Hunter Syndrome is a very rare condition which affects around 7 boys in every million born, and is one of a group of Lysosomal Storage Disorders known as MPS diseases (Mucopolysaccharide).

People suffering with MPS diseases are deficient of an enzyme which breaks down sugar molecules which then build up in body tissues causing progressive damage.

We don't know what the future holds for Eddie but since his diagnosis we have received amazing support from The MPS Society, which helps 1500 families across the UK and we would like to help them continue their great work.

Please help us raise funds for this great charity. 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.