Hello,

A group of us from QuickBooks UK are participating in the Jurassic Coast Challenge on July 21 2018. A grueling 100km in just 24 hours raising funds for SWAN UK.

SWAN UK (syndromes without a name) is the only dedicated support network available for families of children with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.

It is estimated that around 6,000 children are born every year with a syndrome without a name. SWAN UKs Big Ambition is that every family affected by a syndrome without a name has the support they need, when they need it, regardless of whether they have a diagnosis or not. They want it recognised that being undiagnosed is not always a temporary stage; the genetic cause of some conditions may never be known. They want every child and young adult with a syndrome without a name to receive high-quality coordinated care and support, both in hospital and at home.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.