Shine for Shani Pulse Challenge 2021 · 12 September 2021

Shine for ShaniVerified by JustGiving
RCN 1179708
Shani had a large hole in her heart and no artery between her heart and lungs. She suffered heart failure and her family was told she wouldn't recover. Yet, for 5 3/4 yrs, until she died, Shani was a joyful little girl, with a magic heart. We now help other heart children live full and happy lives.

Story



Shani's Story

Shani Berman was born with a complex congenital heart defect - a large hole in her heart and no valve linking her heart to her lungs. Surgeons at Great Ormond Street Hospital implanted a tiny Gore-Tex tube into her heart where the valve should have been in what was intended to be the first of a number of open heart surgeries to normalise her heart and circulation. Then at 20 months Shani suffered from heart failure and her family was told she would not recover. 


Yet, remarkably, over the next four years, Shani grew into a lively little girl, with a "magic heart". She went to school, made friends and was a happy, inspiring and joyful child.
 

From the time she turned 5 however, her oxygen levels depleted further, and the doctors decided to operate - tragically, Shani did not survive the complex operation.

Shine For Shani was set up by Shani's family to find a way to make Shani's memory into a blessing and to raise money to help Great Ormond Street Hospital and other centres of excellence in paediatric cardiology and research help other heart children live full and happy lives.


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Donation summary

Total
£1,874.00
+ £315.00 Gift Aid
Online
£1,874.00
Offline
£0.00

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