In memory of Sienna Patel

Nirav Patel is raising money for UNIQUE (Rare Chromosome Disorder Support Group)
In memory of Sienna Patel
Donations cannot currently be made to this page
Unique is an open, supportive community for people who are looking to learn, share lived experiences and connect with others whose life has been touched by rare chromosome or gene disorders. We are here to support and celebrate people living truly unique lives. We are Unique… and so are you.

Story

Thanks for taking the time to visit our JustGiving page.

Our little girl, Sienna, was born on the 30th of June 2011.  6 months later, we found out that she had a rare genetic disorder that, we would ultimately learn, would impact upon every aspect of her being.

Despite her condition, Sienna was a beautiful, fun loving girl and regardless of how much she might have been suffering, always had a smile and a cuddle for everyone - even complete strangers!

There is very little information available out there for rare chromosome disorders, yet, 1 in 200 babies are affected by a similar condition to that Sienna suffered from.

We lost Sienna on the 2nd of April and we are still waiting for the post mortem results.  We do not believe her passing to be related to her disorder, however, Unique provided us with plenty of information and support when times were tough.

Please donate whatever you can afford - rest assured that Unique will put it to good use in helping children similar to Sienna.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

Donation summary

Total
£3,952.91
+ £470.25 Gift Aid
Online
£3,952.91
Offline
£0.00

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