Story

Invest in ME (IiME) is organising and funding a UK clinical treatment trial of rituximab by the best possible team for the job, led by Dr. Jo Cambridge at University College London (UCL), with world renowned expert Professor Jonathan Edwards in the role of Advisor to the charity. The initial £350k target was raised by IiME supporters from June 2013 to August 2014. THANK YOU! This included £50k to fund a preliminary study on B cells to identify likely responders to this treatment: prerequisite to the trial and a useful study in its own right. We now need to help IiME to raise a further £100k due to the promising early results from the B cell study, so the target on this page is now £450k. We can do it!

Rituximab is an immune modulating drug, which helped 67% of ME patients who took part in research in Norway to such a remarkable extent that the Norwegian Health Directorate apologised for the way ME patients have previously been treated. Even better results have now been found in a follow-up study, with higher doses giving a more prolonged effect. The Phase III multi-centre trial has begun in Norway in 2014, thanks to a successful fundraising campaign run by patients.  

This work needs to be validated in other countries and we thank you for your donations and sponsorship to help raise funds for the IiME/UCL UK trial. Donations go to a special IiME Rituximab Research Fund, separate from the general IIME Biomedical Research Fund, which is being used for other biomedical research projects. IiME is run by volunteers. There are no salaries and no funds will be used for charity admin.  All donations will be used in full to finance the Rituximab research. For text donations, text the code RTUX66 followed by the amount, to 70070.  We will keep you updated with progress and news about the fundraising and the trial. Find out more at: http://www.ukrituximabtrial.org/

Let's do it for ME is an awareness and fundraising campaign run by people with myalgic encephalomyelitis in support of the work of Invest in ME.  Find out more at: http://ldifme.org or email us at: fundraising4me@gmail.com 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

So please dig deep and donate now - thank you for your support. 

Updates 62

£375k now raised, thanks to your sponsorship and including a generous anonymous donation of £1000 from Northern Ireland adding to the offline total raised on this page. Best wishes to everyone for the Easter Holiday Weekend and thanks so much for supporting this vital research.

04/04/15 01:21

At 82% of target. The total raised since patients launched the Let's Do It for ME campaign in support of IIME Charity Bomedical Research Funds has now topped £500k! Every penny goes on their research for diagnostic tests & treatments for this chronic disease. THANK YOU sponsors!

01/03/15 10:56

We see in the New Year with 81% of the target raised, courtesy of another generous (this time offline) donation of £1000 by FM-CFS Canada. HUGE THANKS & HAPPY NEW YEAR to all sponsors world-wide of this sorely-needed research for tests & treatments for myalgic encephalomyelitis.

01/01/15 06:14

80% of new target now raised for this vital IIME/UCL UK clinical treatment trial and related research projects on the role of the immune system and autoimmunity in this neurological disease. THANKS ALL SPONSORS for this precious gift of hope! Please share - ukrituximabtrial.org

22/11/14 10:07

79% now raised! Patients of all ages across UK and the globe urgently need diagnostic tests and treatments for this dreadful disease. This research has realistic potential for both. It's happening in UK thanks to your donations to Invest in ME Research (IiME Charity). Keep going!

03/10/14 11:24

Raising money for

IiME

IiME

Charity Registration No. 1114035

Invest in ME has as its objectives to change how myalgic encephalomyelitis (ME) is perceived and treated in the press, by health departments and by healthcare professionals. We aim to do this by raising funding for biomedical research and improving education about the disease.

Donations 346

All very promising, and exciting!

Donation by Nicolette Wise on 26/04/15

£20.00

+ £5.00 Gift Aid

Thankyou Janet Smart for doing my *Geordie wearing Blue for ME 12th of May* Sorry cant be more xxx

Donation by Lynne on 25/04/15

£5.00

+ £1.25 Gift Aid

For David

Donation by Anonymous on 25/04/15

£50.00

+ £12.50 Gift Aid

Finding a treatment for this 'invisible' disease is SO important.

Donation by Anonymous on 19/04/15

£20.00

+ £5.00 Gift Aid

So important to fund this research. Shame on the MRC

Donation by Anonymous on 18/04/15

£20.00

+ £5.00 Gift Aid

Donation by Sharon on 13/04/15

£5.00

+ £1.25 Gift Aid

text donation

Donation by Anonymous on 05/04/15

£5.00

+ £1.25 Gift Aid

via sms

As a severe sufferer since 1991,if the government had given research money to the correct biomedical people,we wouldn't need to be doing this for ourselves,all this time God bless you this Easter Day.

Donation by Anonymous on 05/04/15

£5.00

+ £1.25 Gift Aid

Keep up the good work!

Donation by Andrew on 19/03/15

£10.00

text donation

Donation by Anonymous on 06/03/15

£5.00

via sms

From my parents who are big support to me

Donation by John on 25/02/15

£40.00

+ £10.00 Gift Aid

text donation

Donation by Anonymous on 22/02/15

£5.00

via sms

Desperate for a cure. Lets hope this is it! Been debilitated for nearly12 months. Feel for those suffering for years!

Donation by John on 14/02/15

£20.00

+ £5.00 Gift Aid

Donation by Freya on 13/02/15

£5.00

+ £1.25 Gift Aid

text donation

Donation by Anonymous on 05/02/15

£5.00

via sms

I can't say it , but I donate to help find answers and cure it ! Stay strong all , keep fighting. X my amazing cousin is one of the most inspirational people I know x love you xxx

Donation by Teresa xx on 03/02/15

£50.00

Amazing strong inspirational people xx say it know it cure it

Donation by Jenna on 03/02/15

£10.00

+ £2.50 Gift Aid

Good luck

Donation by Russell on 30/01/15

£20.00

+ £5.00 Gift Aid

From Delilah aged 3, say it know it cure it challenge!

Donation by Tamsyn on 28/01/15

£5.00

+ £1.25 Gift Aid

Donation by Yvonne Cederholm on 19/01/15

£20.00

Donation by Anonymous on 19/01/15

20,00 €

Donation by phil hargreaves on 18/01/15

£50.00

text donation

Donation by Anonymous on 18/01/15

£10.00

via sms

text donation

Donation by Anonymous on 18/01/15

£10.00

via sms

text donation

Donation by Anonymous on 17/01/15

£10.00

via sms

Donation summary

  • * Online donations£14,329.21
  • Offline donations£364,218.79
  • Text donations£527.00
  • Total raised£379,075.00
  • Gift Aid£2,279.13

* Charities pay a small fee for our service. Find out how much it is and what we do for it.