My little newphew had sereve cerebral palsy and attended the dame vera lynn trust with my sister and It offered great support to both of them. Sadly jordan died at the age of three and to this day he is very much missed by us all. He was a true fighter and i know my sister is great full for all the help and support this fantastic school gave her during jordans short life.

Please help raise money so that other families can keep enjoying the services this school offers. It is not goverment funded and relises on charity donations only.

i am going to try FIREWALKING....

WHERE: Ingfield Manor, Five Oaks, Billingshurst, RH14 9AX

DATE & TIME:  Thursday 05 March 2009, arrive for registration 18.30 - 19.00, Training 19.00-21.00.  

There will be refreshments on sale on the night for supporters and it should be a great night of entertainment all round.

Thank you for visiting my fundraising page,

PLEASE TAKE A MIN TO READ MY SISTERS STORY ON JORDANS LIFE AND WHY THIS SCHOOL MEANS SO MUCH.

Jordan Lewis wells

Not even with a first quick cuddle Jordan was rushed to a special care unit and was given oxygen to help him breath, his breathing continued to struggle so he was transferred to the next available hospital with a bed and was fully ventilated, he remained ventilated for two long painfully agonizing weeks.

’s strength and fight for life was amazing and

 still to this day I don’t know how he pulled through it.

He finally came home when he was three months old,

I could finally look after my little boy.

Jordan gained strength and was a happy little boy, yet my  motherly instinct told me something was not right with him, however nothing prepared me for the news I was about to face.

On August 21^st 2004 the consultant sat me down and told me   that my little boy had cerebral palsy. I didn’t even know what it was, however I knew it wasn’t good news.

I came home and the tears came for days, I just wanted my child to be “normal”, play in the park with other children, play football and go to school. I kept asking myself “why us, have we not been through enough already”.I did everything right through my pregnancy.Why?

As time went on I relised that I had to help my little boy get the best out of this life, so I did my research and found him the best services for his needs and the hospital appointments begun.

We attended appointments daily, physio, hydrotherapy, doctors, consultants, eye specialists, hospital long and far but nothing was too much for my Jordan I would have traveled the world to help him  and Jordan remained a fighter.

Jordan always struggled with his weight gain, so he always managed  o pick up illness which mend spending weeks in and out of hospital. It became our second home.

As he grew older his muscles became stiffer, so daily physio was needed, yet he kept on smiling and giggling. He could never sit unaided or walk but we had specialist equipment to support his needs

I had to  tube feed him at night to help him gain weight and he was on a mixture  of medication

 I remember seeing the words school for cerebral palsy children  on the sign. It was very sad and I never dreamed in a million years I would be attending a disabled school with my child.

Yet going into the school and meeting other parents with other cp children was like a breath of fresh air. Some children’s cp was worse, others better than ’s.

 Finally for me I had other parents to talk with and share stories. No one making  judgment on you or staring at your child because he looks a bit different. Everone talking about what there child can do rather than what they cant.

Ingfield works with parents and children to help them progress in  life life and have some normal living.

 It helps with feeding and daily tasks.The school gives advice, help and parents strength to keep moving forward.

This school has no government funding and receives no grants.

Jordan gained strength in his head control, he started to hold objects and came on leaps and bounds and the school gave me the confidence to confidence to care  for him at home.                                              We both made good friends and attended once a week.                                                                               

picked up another cold and tummy bug in January 2004 and battled in and out of hospital and took a further course of antibiotics. We had a bob the builder party for his 3^rd birthday, where all his family celebrated it with him and despite been full of cold he enjoyed watching all his friends run around.

four days after his 3rd birthday on the 28^th January 2004 passed away suddenly in his sleep. He finally gave up the fight for life.  He developed phenomena and his lungs collapsed over night. The ambulance crew pronounced him dead on arrival. Words can’t even begin to explain the heartache and sadness of losing your child.

Jordan and I spent day and night together for three years. He smiled and battled through what ever was thrown at him from the day he arrived in this world to the night he passed away .His strength, big blue eyes and smile will be close in my heart forever. I miss him very much and am very proud of him. xxxx

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: The Dame Vera Lynn Trust For Children With Cerebral Palsy gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.