My mum, Vivian, is one of the most strongest woman I know. She's always been there for me, providing love and guidance, even with her own daily struggles, she always puts the world first. For the past 16 years, she has been fighting a condition that most people have never heard of: Dystonia. This neurological disorder causes her muscles to contact uncontrollably, which leads to pain, limited mobility, and daily struggles that most people can't even imagine.

Every day she wakes up with the hope of finding some relief from the pain and discomfort, but it's never easy. Simple tasks like walking, getting dressed, or sometimes even holding a cup of tea have become a challenge. We've seen many doctors, tried various treatments, and spent countless hours in hospitals. She has painful injections put into her neck and shoulder muscles every couple of months but they don't eliminate the pain entirely. They give her brief moments of relief, allowing her to move a little more freely and perform basic tasks. However, the spasms return, and she has to endure this cycle month after month. Each injection comes with its own set of challenges- pain, side effects, and the emotional toll of living with a condition that's unpredictable and difficult to manage.

With that all been said, I bet majority of people that know my mum had no idea that this is the battle she struggles with day in and day out, because she never complains, she barely mentions her struggles and she's always helping others out, even at her worst.

She's an absolute super hero and I'm walking to raise awareness more than anything. There is currently no cure for Dystonia but I hope that one day there will be more effective and long term treatment.

I'm reaching out to you, our friends and family, to ask for your support. Your donations will go directly to Dystonia UK. Every little helps, and no contribution is too small. Thank you from the bottom of my heart for supporting my mum and others suffering with Dystonia.

If you are unable to donate, please share, to raise awareness for this very unheard of illness.

Thank you,

Siobhan xo