2025 28 Feb Rare Disease Day 3 April Kettner Concert AGSD-UK

sioned williams is raising money for Association for Glycogen Storage Disease (UK) Ltd

Rare Disease Day 2022 · 28 February 2022

Supports people with glycogen storage diseases, very rare genetic disorders of metabolism. Offers website, newsletter, conference/workshops. Promotes understanding of and research into GSDs which are disabling and life-limiting. www.agsd.org.uk Fundraising advice: info@agsd.org.uk

Story

‘I am rare and there is value in all rarity; therefore I am valuable.’ Og Mandino

I have McArdle Disease, an ultra-rare Glycogen Storage Disease, Type V. Please check out www.agsd.org.uk

In the world of music, I am often on show publicly, and I am judged by my last performance. Sadly, I have also been judged even without a performance, and I have also been judged by misguided or factually incorrect information. This year in particular, I want to stress the importance of not stigmatising those with disabilities. McArdles might be invisible, but I refuse to be invisible.

I am honoured to be giving a concert on 3rd April (please see the flyer attached) for the Kettner Society at the National Liberal Club in Whitehall London. The entre income from the concert I shall be donating to the AGSD-UK. I’ll spill all the beans on the musical life of a small Welsh travelling harpist, the incredible connections made, in the most unexpected ways. Laughter and tears along the way, and plenty of emotion and honesty!

Please join me on the adventure. Tickets can be purchased here https://www.eventbrite.co.uk/e/sioned-williams-at-the-national-liberal-club-it-takes-guts-tickets-1234229526739?aff=ebdsshios

For those who are able to attend the concert, but also wish to give additional funds to the AGSD-UK, and for those who may not be able to attend the concert, please consider donating to this Just Giving page, so that together we can make a positive impact on the lives of so many. I am very grateful for ALL donations.

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Donation summary

Total
£4,810.82
+ £1,088.38 Gift Aid
Online
£4,810.82
Offline
£0.00

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