Marc, Rob, Jose and Michael 60km in 24 hours walking challenge

Team fundraiser2 membersCure CLCN4
raised of £10,000 target
by 145 supporters
Cure CLCN4

Verified by JustGiving

RCN 1190344
We raise funds for research to find effective treatments for CLCN4


One of our good friend's daughters Daphne, ( Rob's niece ) was diagnosed with CLCN4 a rare genetic disorder associated with intellectual disability and speech delay. There is no known cure, and little known about what happens to the brain when this 'channel' fails to work properly. The charity, CLCN4 has the goal of raising awareness, advancing research and providing care to children diagnosed with the condition. The message is one of hope, determination that doctors will one day be able to have an entirely different conversation with a newly diagnosed family. There has been very little limited research into the condition, but with many thousands of individuals suffering worldwide from its effects. As well as raising funding for charity, we are also keen to raise awareness of CLCN4. Any support would be very gratefully received

Team members (2)

About the charity

Cure CLCN4

Verified by JustGiving

RCN 1190344
We are a registered charity aimed at providing support, raising awareness and funding medical research for effective treatments for CLCN4, a rare genetic condition that causes intellectual disability and other problems such as epilepsy, behavioural disorders, movement disorders, and microcephaly.

Donation summary

Total raised
+ £1,832.50 Gift Aid
Online donations
Offline donations

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