Marc, Rob, Jose and Michael 60km in 24 hours walking challenge

Raising money for Cure CLCN4

We are a registered charity aimed at providing support, raising awareness and funding medical research for effective treatments for CLCN4, a rare genetic condition that causes intellectual disability and other problems such as epilepsy, behavioural disorders, movement disorders, and microcephaly.

Story

One of our good friend's daughters Daphne, ( Rob's niece ) was diagnosed with CLCN4 a rare genetic disorder associated with intellectual disability and speech delay. There is no known cure, and little known about what happens to the brain when this 'channel' fails to work properly. The charity, CLCN4 has the goal of raising awareness, advancing research and providing care to children diagnosed with the condition. The message is one of hope, determination that doctors will one day be able to have an entirely different conversation with a newly diagnosed family. There has been very little limited research into the condition, but with many thousands of individuals suffering worldwide from its effects. As well as raising funding for charity, we are also keen to raise awareness of CLCN4. Any support would be very gratefully received

Team members (2)

Help marc ruddle's team

Sharing this cause with your network could help raise up to 5x more in donations. Select a platform to make it happen:

You can also help by sharing this link on:

Donation summary

Total
£11,635.27
+ £1,832.50 Gift Aid
Online
£10,800.27

Charities pay a small fee for our service. Learn more about fees