AndynCharlotte Stockley

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Team fundraiser • 1 members • PNH Support
£578
raised
by 24 supporters
Super Rare is a campaign where we are asking people to fundraise to help people affected by rare bone marrow conditions. The theme for 2023 is Stronger Together - because seven small charities are coming together to join the campaign

Story

PNH Support is a charity that supports people affected by Paroxysmal Nocturnal Haemoglobinuria (PNH). The charity provides information and peer to peer support, brings people together, advocates on their behalf and holds a biennial family conference

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About the campaign

Super Rare is a campaign where we are asking people to fundraise to help people affected by rare bone marrow conditions. The theme for 2023 is Stronger Together - because seven small charities are coming together to join the campaign

About the charity

PNH Support

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RCN 1161518
www.pnhuk.org
We support patients living with Paroxysmal nocturnal haemoglobinuria (PNH) and their families in England, Wales and Northern Ireland . Our vision is "No PNH patient in England, Wales and Northern Ireland is alone. All are represented and enabled to live to their full potential with PNHi". s an ultra-rare bone marrow failure disease. Our mission is "We provide support through educational resources and advocacy, as well as peer to peer contact." PNH is acquired (which means it is not inherited) and affects 1.3 people per million. Those living with this condition can require life long treatment to address symptoms such as extreme fatigue, breathlessness, pain and sometimes complications such as blood clots and kidney damage.
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Donation summary

Total raised
£578.00
+ £98.75 Gift Aid
Online donations
£578.00
Offline donations
£0.00

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