We sadly lost Dean in October 2025 at the age of 39! He was the most amazing Son, Brother, Uncle and friend anyone could wish for.

Although most people with epilepsy live long and healthy lives, epilepsy is one of the top-ten causes of early death. At SUDEP Action, we focus our efforts on providing tools to help keep people safe and on the priorities that bereaved families tell us are important: To prevent deaths; To be supported; To be involved.

We have won national and international honours for our achievements to date, but we recognise there is much more work to do, and this is why we need your donations. With your help we can strive to make a difference.