My Long Covid Journey

My name is Emily. For almost three years, I’ve been living with a severe, life-altering illness that has completely changed my world. While I don’t want my illness to define me, it has dramatically impacted my health, independence and quality of life.

Before getting sick, I worked full-time as an electronic engineer with a passion for problem-solving and emerging technologies. I was active, sociable, and happiest when surrounded by friends and family. I loved the gym, running, travelling, and saying yes to life.

In March 2023, after a skiing trip in France, I developed what felt like a bad flu. Unlike a normal illness, it never went away. Instead, I was left with crushing fatigue, brain fog, headaches, muscle weakness, dizziness, and a constant feeling of being “underwater.” Even basic tasks became overwhelming. Despite resting and trying to return to work gradually, my health only deteriorated.

Over time, my body seemed stuck in a permanent state of fight-or-flight. I pushed myself for months, desperate not to let anyone down, but every effort came at a cost. Eventually, I was forced to move back in with my parents and go on long-term sick leave.

I’ve since been diagnosed with ME/CFS and, more recently, long Covid — conditions that are closely linked and still poorly understood. I’ve tried countless treatments and therapies, from medical consultations to alternative approaches. Some helped my mental wellbeing, but none have restored my health. In fact, certain treatments made me significantly worse.

At my most unwell, I’ve struggled to stand, walk, eat, or tolerate noise and light. I can now walk for only a few minutes at a time and rely on mobility aids, including an electric wheelchair, to leave the house. Most days are spent resting, managing symptoms, and conserving energy. It took nearly two years just to regain the ability to read.

Despite everything, I’m still hopeful. I’m currently exploring an advanced treatment option called apheresis — a blood-filtering process — one of the few remaining avenues available to me in the UK.

Research into ME/CFS and long Covid is severely underfunded, leaving thousands of people like me without answers or effective treatment. That’s why I’m supporting Long Covid Support, who fund vital research and advocate for patients.

My incredible sister, Kate, and her fiancé, Martin, are running the Zurich marathon to raise money for Long Covid Support, and I’m endlessly grateful — to both of them, to the rest of my family, and to everyone who has supported me through this journey.

Your donation helps bring hope — for answers, treatments, and the chance for people like me to reclaim our lives.

Thank you so much for reading and for supporting this cause.

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