Emmett's Entourage!

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Raising money for Cardio Facio Cutaneous International Inc

For more than 20 years, CFC International has worked to provide better understanding and treatment of CFC Syndrome. We know this work improves the quality of life for individuals living with this rare disorder.

Story

Thank you for supporting CFC International and Emmett's Entourage! After we his diagnosis of CFC Syndrome, we found an extended family of parents and caregivers that changed our lives. This family is CFC International; an organization that dedicates resources to clinics, education, care guidelines, conferences, and research.

Over the last two decades, the organization has hosted 10 family medical conferences, provided access to more than 50 specialists in the Rasopathy disorders, contributed more than $100,000 to research, introduced a biobank, research registry, and more. They continue to improve our lives, and it's all because of you and your generous support.

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Donation summary

Total
US$725.00
Online
US$725.00

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