Following my diagnosis and my GP and consultant not knowing what GIST cancer was due to it's rarity, I was contacted by GIST cancer UK and they invited me to London to meet specialists and other patients. This really helped me to understand the different types and how it affects people different but also get some closure in talking to other people who were at various different stages of diagnosis.

GIST Cancer UK funds research and provides support for patients with a rare form of cancer known as Gastro-Intestinal Stromal Tumour (GIST). We provide patient information in hospitals throughout the UK, host support meetings for patients and carers and host an online community providing practical advice and information. We fund research into furthering treatment options for GIST, work with medical professionals to increase awareness of GIST cancer, and fund a specialist PAWS-GIST Clinic in Cambridge.

Visit our website: www.gistcancer.org.uk