Update 3 Feb - we have smashed the target already - thank you for all your generous support for this campaign - it will truly make a difference to so many people including our beautiful, amazing and special little girl Fleur.

We are taking on DEBRA UKs 280,000 Steps in February challenge to help bring us closer to a world without EB.

Epidermolysis Bullosa (EB) is a painful genetic skin condition, it currently has no cure.

Every pound raised will go towards life-changing research projects to help us #FightEB. You can help me make a difference to people living with EB, to ensure a future free from pain. Thank you.