Goal:

So, there will be 3 groups spread over 3 countries (Ireland, Holland & Taiwan). The aim is to run a half marathon April (23rd - 30th). Maybe in the future there will be 5,6,7 countries lets see where it goes.

We will be set off in locations of each groups choice on a given day in April in order to raise money for Debra Ireland. This charity is really close to home and i would like to dedicate this event in my Brother Aaron's name.

What does Debra Ireland do and why does it exist ?

DEBRA Ireland is a national Irish charity, established to provide support services to patients and families living with the debilitating skin condition epidermolysis bullosa (EB). We also drive research into treatments and cures for those living with the condition. We were established in 1988 by the patients and families of those living with EB . Our patient focus has never changed since then and is reflected by the fact that patient family representatives continue to sit on our Board and their opinions inform our decisions both in terms of how we raise money and how we spend it. We provide hope and support to those living with EB, there are currently 300 people living in Ireland living with the condition. DEBRA Ireland provides support not only to them but to their families who regularly act as carers. Meet some of the people Debra Ireland helped here.

Motivation:

Aaron the character that he was spite the condition he was in his whole life (EB) was the heart and glue of our family and still is, even after he pasted away many years ago. Being young when he passed i missed out on getting to know Aaron at a mature level and didn't get to fully connect with Aaron, i feel now through Debra Ireland and events such as this i can connect with him but through a different medium . Proving to Aaron in a way that i still look up to him and even after he is gone he still influences my life and the life of others around me.

Most of my close family and friends know my family story or Aarons story, and it was these people that brought this fundraising project to life. We wanted a way to all stay connected even despite thousands of miles apart. I myself cant think of a better way to stay connected and do such a task for such a good cause.

For those that would like to know more about Aaron please take 5 minutes to read Aaron's story.

Help needed:

If any would like to participate feel free to contact me or any advocate that is helping raise money. I will have Debra t-shirts and Debra tattoos available for any individual that would like to participate. Also if an individual would like to join the team they can create and independent fundraising page on JustGiving and i can add your page to the team (community).

Spread the word !!

Additional Info:

When donating all proceeds go directly to Debra Irelands bank account there is no middle man and the transaction takes the same as would a normal bank transaction.

For people that are weary about joining the run, no need to be !! The run can be broken down over a couple of days or in teams (kind of relay race) i.e.:

Day 1 - 10km - Day 2 - 11km

Day 1 - 7km, Day 2 - 7km, Day 3 - 7km Weekend

Group (same day) 4 x people 5km each