Liam and his extra Y

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Raising money for UNIQUE (Rare Chromosome Disorder Support Group)

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Unique is an open, supportive community for people who are looking to learn, share lived experiences and connect with others whose life has been touched by rare chromosome or gene disorders. We are here to support and celebrate people living truly unique lives. We are Unique… and so are you.

Story

Coronavirus has had a terrible impact on Uniques fundraising this year, as it has more many people, businesses and charities. We anticipate a loss of almost £180,000 this year without the wonderful fundraising events, marathons, cake sales, skydives and much more that you do for us.

Yet the need to support families hit with new chromosome/gene disorders diagnoses remains critical. And many Unique families with adults or children with severe medical, anxiety or financial issues are suffering because of the virus, the isolation of lockdown, the lack of schools and carers. They desperately need support too. We need to continue to connect families, backup doctors and publish chromosome specific guides.

Due to the current circumstances, like many charities we have taken the difficult decision to postpone this years complete awareness week. We know many of you had been planning fun & exciting ways to raise funds and awareness for Unique and rare chromosome & gene disorders, and we hope y

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