Story
Mike, John and a few of their pals will be taking part in the "Longest Day" which is 4 rounds of golf in one day at Bamburgh - first tee off is 4.30am!!!
Pseudomyxoma Survivor is a non-profit organization, run by patients and caregivers.
Back in March 2025, our Claire was diagnosed with this rare cancer... here is her story:
On Monday 3rd March 2025 I was handed a print out and was told I had cancer.
After a few appointments it was confirmed - Pseudomyxoma Peritonei!
(SOO-doh-mix-OH-muh PAYR-ih-TOH-nee-EYE)
We couldn’t even pronounce it.. therefore I have PMP Cancer - we don’t discuss the Stage. This is a rare cancer and I would need to be under the care of Specialists at The Christie at Manchester.
On Wednesday 30th April down at The Christie I had what’s referred to as ‘The Mother Of All Surgeries’ They removed 7 organs…including my Appendix (where the little sod started!) I’ve learnt a lot about the human body and what you can live without!
After 11 hours of surgery my body couldn’t handle much more - I woke up to the news that I wasn’t cancer free. I’ve learnt that this was a longer day for others than it was for me.
11 long days at The Christie later, I was allowed home - home to my beautiful boys, family and friends. It’s hard being a Mam, although sometimes harder being a daughter, it’s simply not natures way.
I will never forget everyone who was there for us, helped, checked in - we couldn’t have done it all without help, physically and emotionally. You learn your circle, you learn your village.
Manchester became a road trip! After a few scans you soon get used to it all, you learn Consultants aren’t always the most empathic and often deliver brutal blows without a second thought.
In November I started 6 months of Chemotherapy. I’m more than half way through, the end is in sight next month. But the end isn’t it sight! This is just another hurdle ticked off for now.
With PMP being a rare cancer the money simply doesn’t get spent on research which is sometimes quite hard to accept - ‘Sorry we just don’t know enough about it’. I hope this changes someday soon.
When someone says "You're strong," part of you wants to believe it, but another part quietly thinks,
"I don't feel strong at all. I'm just trying."
I’m teaching my boys that you never give up, you get up and you get on with life.
Keep Smiling! x
Team members (1)
- £1,546 of £1,000
