In memory of Simon

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Team fundraiser8 membersMuscular Dystrophy UK
£7,770
raised of £5,000 target
by 360 supporters
Muscular Dystrophy UK

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RCN 205395 (England and Wales) - SC039445 (Scotland)
We fund research into muscle-wasting to improve the lives of everyone affected.

Story

We are raising money in memory of our dear friend Simon Mirfin who sadly passed away on the 27th September 2023 at the age of 46. Simon was diagnosed with Facioscapulohumeral Muscularly Dystrophy from the early age of 11 which is a rare Genetic Disease that affects the muscles of your shoulders, upper arms, lower legs.

However, this did not stop him and he walked to school refusing offers of lifts. Football was his life from a young age. Straight home from school, change of clothes and onto the Cricket field for hours of football. With the traditional jumpers for goal posts.

Unfortunately Simon started to lose his mobility and this charity helped both him and his family gain a deeper understanding of the condition and also provided ideas needed for ongoing support, future care needs and equipment that would help Simon to lead the best independent life. Despite the pain, Simon remained forever optimistic and full of wit and humour.

In memory, a group of school friends - Sean Curry, Paul Bosworth, Paul Crossland , Adrien Harris, Mukesh Patel and friends have decided to take on the challenge of completing The Three Peaks Challenge on 20th April 2024 to raise much needed funds and awareness. We are sure Simon will be looking down laughing at the prospect of his "old" friends with a host of ailments taking on the task.

Muscular Dystrophy UK is the charity for 111,000 people living with muscle-wasting conditions. They are making a difference today, providing vital information and support to help people live as independently as possible. They are making a difference for tomorrow, accelerating progress in research and driving the campaign for access to emerging treatments.

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About the charity

Muscular Dystrophy UK

Verified by JustGiving

RCN 205395 (England and Wales) - SC039445 (Scotland)
Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to beat muscle-wasting conditions.

Donation summary

Total raised
£7,769.83
+ £1,535.18 Gift Aid
Online donations
£7,769.83
Offline donations
£0.00

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