H1st Annual Virtual Bardet Biedl WALK for Isabella & Kate Chisholm

Our Isabella turns 21 on Saturday, October 17. Isabella was born with a rare congenital condition called Bardet Biedl Syndrome. As it turns out, Isabella’s birthday this year is even more special for her as will be the exact date of the 1st annual virtual walk for Bardet Biedl Syndrome (an international event spearheaded by the Marshfield Research Clinic for BBS in Wisconsin).

As most of our Facebook crew know, our eldest daughter Isabella as well as our baby Kate, were both born with Bardet Biedl Syndrome. We are initiating a 7 day challenge in hopes of raising funds on our daughters’ behalf which will contribute to moving this disease forward. Your support will serve to help all of the families having to deal with the worries, trials and tribulations of having loved ones afflicted with this life long all encompassing condition. Any donation at all is so much appreciated and will help to drive a big outcome. Let’s see where this can go!!

Bardet-Biedl syndrome (BBS) is a rare genetic disease of the cilia affecting every organ system in the body. BBS begins to affect the health of a child before birth and continues to severely impact daily activities throughout one’s life. The prevalence is about 1 in 100,000. These are some primary markers but are not limited to, and most of which our Bella displays…Kate’s severity is yet to be determined.

• Major vision loss or blindness

• Obesity resulting from impaired regulation of hunger and metabolism deficiency

• Problems affecting urinary and genital organ function and structure

• Chronic kidney disease

• Impaired cognitive function

• Extra fingers and toes

• Heart problems

• Problems with language, thinking, judgment and memory

• Endocrine disorders that may affect growth and development, metabolism, sexual function, reproduction and mood

• Social Emotional development

• Poor motor control

www.justgiving.com/campaign/2020BBSWalkathon

On the right side of the page chose one of three options…..choose option 2- START FUNDRAISING Katherine-Chisholm will be the fundraiser and the name of our team will be TEAM BELLA 21.

We thank you from our soul.

Love Team Chisholm