Last year in March 2020, my world fell apart and as a family we were left distraught as Harry was diagnosed with Duchenne.

Duchenne is a rare but extremely aggressive form of muscular dystrophy. It is due to a genetic fault on the x chromosome which means that muscles don't repair as dystrophin is not produced. Harry's muscles are simply wasting away. Duchenne is a terminal and life limiting condition of which the average life expectancy is around 21. However some boys may die before this age. The disintegration of muscles means that Harry will lose the ability to walk and that his heart and lungs will also weaken. He will not only need a wheelchair but ventilation, heart medication and feeding support.

As a family we are so grateful to Fight for Alfie for giving Harry a chance to be part of the study with other boys from around the world.

Please help Harry and all of these boys to fight Duchenne by donating to my challenge and the challenges and events in this team to support the New study Project Care for the Rare