Macclesfield Rugby Club

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Team fundraiser3 membersFunding Neuro
£9,377
raised of £5,000 target
by 205 supporters
This campaign will lay the foundations for human trials of a pioneering therapy for Motor Neurone Disease (MND). The fatal disease affects the brain and nerves and causes weakness over time. There is currently no cure for the condition.

Story

Our friend, and legendary Scrum Half of Macclesield Rugby Club, Richard Usher, was recently diagnosed with Motor Neurone Disease (MND). Rick was for many years a GP in Macclesfield as well as having various medical roles with England Rugby and other sporting bodies. In recent years he has been the Team Doctor for Team Sky and currently for Ineos Grenadiers.

The disease, whilst being hereditary, is 8 times more likely with people that have played impact sports and as a consequence is well known within the rugby fraternity. It's awareness is championed by ex Scottish Rugby International Doddie Weir (My Name'5 Doddie Foundation). Doddie is now some years down the line as an MND sufferer and shares his journey with fellow sufferer and ex Rugby League player Rob Burrow.

Whilst there is currently no cure for the condition our fund-raising challenge is to support the work led by Bristol-based neurosurgeon Professor Steven Gill who is working to combine three elements: Gene Therapy with Viral Vectors delivered via Convection Enhanced Delivery (CED). It is known that specific viruses can have a therapeutic effect on motor neurons. CED is able to deliver these viruses directly to the neurons in the brain. Delivery of genes to affected neurons to correct or repair defects has been a major challenge, but thanks to My Name'5 Doddie Foundation and other fundraising the research funds are well on their way! Please help support our campaign by donating and together we can hopefully make a major breakthrough that will help.

Our physical challenge, to nudge you into supporting Rick and the MND Funding Neuro campaign, is a slog up Cheshire's 3 highest Peaks: Shuttlingsloe, Shinning Tor and Tegg's Nose. The 14 mile round slog will require 2,500 feet of climbing and a lot of puff-and-pain for our old and battered rugby bodies.

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About the campaign

This campaign will lay the foundations for human trials of a pioneering therapy for Motor Neurone Disease (MND). The fatal disease affects the brain and nerves and causes weakness over time. There is currently no cure for the condition.

About the charity

Funding Neuro

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RCN SC042061
We fund research that will lead to treatments and cures for neurological conditions, we bring researchers together and patients of all disorders, to share ideas, support innovation and deliver results. We are currently involved in trials for DIPG brain tumours, Parkinson's Disease and MND.

Donation summary

Total raised
£9,376.79
+ £1,980.00 Gift Aid
Online donations
£9,376.79
Offline donations
£0.00

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