1 in 17 people in the UK are living with a rare condition. Help us to ensure that patients and families living with rare conditions have equitable access to high quality services, treatment and support.

We are a national alliance of over 220 charities and patient support groups. Together we advocate and campaign for the 3.5 million people in the UK with a rare, genetic or undiagnosed condition - improving diagnosis, care coordination and treatment options. We run Rare Disease UK and SWAN UK.