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Bertie's Buccaneers: Be Strong for Bertie!

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In 2014 Bertie was diagnosed with Ullrich congenital muscular dystrophy (UCMD). This is a progressive muscle weakness condition that impacts the muscles used for movement and breathing and sometimes the heart too. He is now nearly 12 and uses a power wheelchair. Unfortunately he has started to have scoliosis (curve in the spine), which we had desperately been trying to avoid. 

Bertie's Buccaneers is a Family Fund of Muscular Dystrophy UK (MDUK), a national charity. The funds we raise go directly into the Ullrich CMD appeal and 100% fund scientific research. Ali (Bertie's mum) is a Lay Research Panel member for MDUK and helps to represent the interests of the community.

Including funds we've raised via JustGiving and elsewhere, we've raised around £40K but generally one research project into a treatment can cost around £250k+ When you have something rare - Bertie is 1 in a million - it is very difficult to raise those funds. 

Thank you everyone who has undertaken an event and donated. We appreciate you! 

Ali & co xxx

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Raised: 70%

Team target: £20,000.00

Raised so far: £14,077.40

Team members

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Member photo Name Fundraising progress Raised so far
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Alison Kay

Bertie's Buccaneers

44 donations



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Alison Kay

Bertie takes on Parallel London

42 donations



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Alison Kay

Ali takes on the Alton Towers 10K

18 donations



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Alison Kay

Vinny's Bike for Bertie

7 donations



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Alison Kay

Abigail's sponsored hair cut

2 donations



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Alison Kay

Vinny's 240 miles in 24 hours

19 donations



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Amanda Ducker

Amanda Stuart Jack & Millie for Bertie's Buccaneers

23 donations



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Andrea Gerring

Andrea's Southport Triathlon

32 donations



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Andy Brown

Andy - 2018 London Marathon

142 donations



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Catherine Briscoe

Thomas and Eliza's page

17 donations



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Delphine BENEZET

Break my target for Bertie!

30 donations



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Jonathon Murphy

Jono is running to raise money for #TeamOrange #Team Bertie

6 donations



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Kim Price

Kim for Bertie's Buccaneers

24 donations



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Nick McCoy

Nick's West Lancashire summer triathlon page

31 donations



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Richard Lincoln

Make Today Count

24 donations



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Russell Wright

Russell's page

58 donations



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