In 2014 Bertie was diagnosed with Collagen VI myopathy (Ullrich muscular dystrophy). We set up a community called Bertie's Buccaneers in 2015 to raise awareness of this cruel condition and where together we can fight to fund a cure. Join us!
www.bertiesbuccaneers.com
In 2016 we became a Family Fund of Muscular Dystrophy UK (MDUK) in order to fund research into a cure. Cures for rare diseases are thin on the ground and it is really down to the families of the children with these cruel conditions to raise the funds themselves. The Ullrich CMD appeal for MDUK supports groundbreaking research right here in the UK but it also contributes to the CollagenVI Alliance, a global initiative to find cures for conditions on this spectrum.
Remember: Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never share them with anyone or send you unwanted emails. Once you donate, they'll send your money directly to the charity. They'll make sure Gift Aid (an additional 25%) is reclaimed on every eligible donation by a UK taxpayer, too. That means more money goes to the charity, faster, with JustGiving.
