On May 11th 2013 as many people we can muster will be walking 10, 20, 40 and 60km across the South Downs to help speed treatment for Rett Syndrome.
These distances may seem daunting, and no doubt there will be blisters, cramp, pain, blood and tears for most of those involved. But we are relentless in our drive to cure our girls.
Many of our girls cannot stand let alone walk a single step. Alongside the additional challenges they face daily locked in a body, aware but unable to communicate.
It should not be like this. It doesn't have to be like this. Read about the potential for treatment here.
Thank you for walking and bringing science also a step closer to reality in curing our girls.