About Nathan:

In 2011, Nathan was born with Edwards Syndrome and Jacobsen Syndrome. This is an incredibly rare combination of 2 genetic disorders that cause multiple medical and developmental issues. The doctors told his parents that he had a heart condition and he would likely not live for more than 2 weeks. However, Nathan defied the doctors and survived due to the lifesaving heart surgery he was given at 1 week old and again at 4 months old. Since then, NayNay (as he is affectionately known by those who know and love him) has overcome more months in hospital and more surgeries this his parents can count and months in hospital. NayNay has shown, every step of the way, that he writes his own story - he is non verbal but uses other ways to communicate, he can’t walk but that doesn’t stop him from getting to where he wants to go. Anyone who meets NayNay cannot help but fall in love with him.

Nathan is a happy, stubborn and loving boy who is adored by his 3 brothers, his parents a wonderful team of friends and family.

Nathan’s family:

Nathan has one younger and two older brothers. The two older brothers, Harrison and Joey, both work hard at school and help look after their younger brothers when at home. Harrison enjoys playing guitar and is currently at University in Nottingham. Joey is at college and enjoys being very creative with music and art. He is part of a youth group which promotes music in the community. Jesse, the youngest, is only 7 but already understands so much about Nathan’s medical needs and loves making his brother Naynay laugh! Nathan's mum and dad, Sadie and Stuey, both work for South East Coast Ambulance service - Sadie as a Business Support Manager in the head office, and Stu as a Trainee Associate Ambulance Practitioner out of Gatwick Make Ready Centre. They both work extremely hard, at work and at home, to serve their community and family.

The project:

Nathan parents were tenants of the local council. They lived in a small first floor flat with their 2 boys. After Nathan was born the family were moved from their flat and into a house. As Nathan grew so did his needs. It quickly became apparent that the house was unsuitable for Nathan. Instead of moving the family again the council spent years making minor adjustments but refused to commit to any major project.

In January 2019 the council stated that since they would not do any further works to the house, the family would have to move. The council began a search for the house that would meet the needs of Nathan and his f