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Andrea & Louise's page

Andrea Parker is raising money for The Society For Mucopolysaccharide Diseases (The MPS Society)
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Virgin London Marathon 2012 · 22 April 2012 ·

The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Story

<p>Mucopolysaccharide and related diseases are individually rare; cumulatively affecting 1:25,000 live births. One baby born every eight days will be diagnosed with an MPS or related disease. These multi-organ storage diseases cause progressive physical disability and, in many cases, severe degenerative mental deterioration resulting in death in childhood.</p> <p>Louise's niece Tillie Mae is four years old and was diagnosed in April 2010 with MPS III Sanfilippo. Sadly there is no cure for Tillie Mae's illness and for this reason we need to raise as much money as possible.</p> <p>We are running the London Marathon 2012 to raise awareness of this cruel and incurable disease and to also raise lots of money for this fantastic charity which helps support Tillie Mae and her family.</p> <p>As this charity is very close to our hearts we would appreciate your generous donations for Tillie Mae&nbsp;and also for all the other children in the UK affected by this disease.</p> <p>Thanks for taking the time to visit my JustGiving page.</p> <p>Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving &ndash; they&rsquo;ll never sell them on or send unwanted emails. Once you donate, they&rsquo;ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it&rsquo;s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.</p> <p>So please dig deep and donate now.</p>

Donation summary

Total
£2,700.00
+ £359.75 Gift Aid
Online
£1,626.00
Offline
£1,074.00

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