Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
Hi everyone, It’s Aisha here and I would just like to say please show your support for the MPS Society. MPS is short for Mucopolysaccharidosis. I have Type IVa of the MPS condition, which is known as Morquio Syndrome. The condition is very rare(...I believe there are 27 affected persons.)
Throughout the UK over 1200 children and adults affected by an MPS or related disease rely on the Society for emotional, practical and social support. The Society also raises vital funds for medical research and promotes awareness of these diseases through regular conferences, information days, regional clinics and information resources. The efforts and contributions of voluntary fundraisers and donors, individuals and organisations, are vital for the Society to continue their work.
There are so many ways you can help, whether it’s a sponsored sporting challenge or a one off donation, whichever appeals to you most. It all makes a difference. On Friday 21 May 2010 we held an MPS Awareness Day at Manor High School where all my friends jumped into informal shoes and donating for a good cause. It was amazing!
I will also have a stand atmy sisters school, Brookside Primary School where I hope to raise some awarness into my condiont on Saturday 12th June. Please come if you can, even if it is for a few minutes!.
The condition is so rare that it has always been difficult to raise money and now that you all know me or have seen me around the school, town, on the www.mpssociety.co.uk website or even on the BBC news (East Midlands on Friday 21st May 6.30pm), please show your support.
This is the first time the awareness day is being held in Leicestershire and we are all delightfed that Manor High School took part in it. Brookside School are also holding it for the FIRST time!
If you have the time I would like you to read up on the links below before donating. That will make my parents and myself very happy! Then... I know I have created some serious awareness into my condition! And if you are touched by what you read - I know you will tell others!
Rememeber every penny counts no matter how small! Its the awareness that matters!
I am truly confident I am going to reach my target and perhaps go well beyond it!
You will find lots of information on www.mpssociety.co.uk head on to Morquio or Aisha's story.
You can contact me at a1sh@live.co.uk for any information, offers, and messages of support. I love hearing from people.
I have lots of information that I can send you but dont want to overload you with the information. I will be doing a short presentation at School which I would love to send to anyone who requests it.
