This page has been set up in remembrance of our little angel Anabelle who sadly passed away on Christmas Day.

 

As some of you may be aware she was diagnosed with MPS1 Hurlers Syndrome in March 2012 and had a Bone Marrow Transplant in August. Her strength and resilience saw her through this tough episode in her life and we were able to bring her home in September. Her progress from this point was inspiring and she continued to develop, catching up with her milestones. Unfortunately shortly before Christmas and unrelated to her condition, she became ill and lost her battle on Christmas Day.

 

To remember her name we would welcome donations which would go to the MPS Society and would help fund research into this rare genetic condition.

 

Although there was treatment available for MPS1 there is currently no treatment available for MPS III Sanfilippo disease, however, there is hope. There is a treatment known to dramatically improve the lives of Sanfilippo sufferers but it's not yet available in the UK as it hasn't been clinically tested. We need to raise £600,000 to fund a clinical trial at Manchester Children's Hospital, so that hundreds of children can receive this treatment that could save their lives.

 

Thanks for taking the time to visit my JustGiving page.

 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

 

So please dig deep and donate now.