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Bill's page
I'm running 10km for The National Brain Appeal because more research is needed into Polymyositis.
Event: BUPA London 10,000 2012 on 27/05/2012
£9,568.94 raised of £10,000.00 target
197 donations
My Target:
£10,000.00
£9,568.94 raised so far
How to make a donation
Donate online at - www.justgiving.com/Bill-Aston
By mobile internet Scan this code on your smartphone to go straight to William Aston's page.
By text message to donate £10 Text DPSQ60 £10
to 70070
My story
Hi!
Thanks for coming to donate on my justgiving page. As you may be aware I was diagnosed with Polymyositis 3 years ago in May/June.
For those who know me you'll remember I was a fit and (hyper)active man. Unfortunately 3 years ago I became acutely unwell. At the time I lost 3 stone in muscle in 3 weeks. I was so weak I could hardly raise myself, I could not physically roll over in bed and even my muscles used for swallowing didn't work. I was diagnosed with a rare muscle wasting autoimmune disease called Polymyositis. For the next two and a half years my body continued to breakdown my muscles at about 10-30x the 'normal' rate muscle is turned over. To compound matters I have also got Interstitial Lung Disease (ILD) which basically means my lung tissue has been attacked and become scarred. This is a reasonably common complication of Polymyositis.
Polymyositis is a rare disease and research into its causes and looking for cures are poorly funded. As such little is known about the disease and it's management has been slow to change.
Thankfully after I was diagnosed I was put in touch with Professor Mike Hanna who works from the Queens Square Neurological Hospital in London. He carries out research into many neuromuscular disorders, of which Polymyositis is one. Through research I am pleased to say management of this and other similar diseases is changing, and more interventions are being found that help people whose immune system are attacking their muscles. It is with the help of his expert judgement and management that I have been able to recover to the level I am now.
I am very lucky. Since March last year I have been slowly improving since changing my regime as directed by Professor Hanna. I am still on daily medication without which I start to slip backwards but generally my disease is now under some semblance of control. I am back at work and got back into a swimming pool about 2-3 months ago.
I have regularly joked with Professor Hanna that I would join him in his annual fund raising run when he got me better. Well as of the end of April I felt good enough to try and run. I managed about 0.75km. My lungs burned thanks to the ILD, my whole body ached and I was knackered. It was at this point I decided I would run 10km in 5 weeks time!
So on 27th May 2012 I am coming to London, meeting with Prof Hanna outside our usual hospital appointments and running 10km. I can only think it is the hardest thing I will have ever done. That's coming from a guy who has run a marathon and swum the english channel as part of a relay! The only thing that will get me round is knowing that none of these things are as hard as climbing a flight of stairs or getting through a day just standing up when you have Polymyositis.
The money I raise will be split between the Comprehensive Centre for Neuromuscular Disease at Queens Square and The Myositis Support Group. The CCND, lead by Professor Hanna, develops research programmes to find treatments for neuromuscular diseases such as Motor Neurone Disease, Muscular Dystrophy, Myaesthenia Gravis and Polymyositis amongst others. The support group is the only charity supporting patients, and families of those with the debilitating Myositis diseases. They provide information, support and also help fund research into these diseases. I know personally how much this charity means to a small handful of men, women, and children who have what I have.
I hope you can spare some hard cash to help me raise funds for these worthwile causes.
Many Thanks
Bill
My gallery 1
My charity
The National Brain Appeal
Charity Registration No. 290173
The National Brain Appeal (formerly the National Hospital Development Foundation) is the charity dedicated to raising funds for The National Hospital for Neurology and Neurosurgery in London, one of the world’s leading neurological centres.
Donations 197
Sorry for the late reply, well done mate really proud of you & good luck in the future.
Donation by Derek & Rhonda Warwick on 14/08/12
£250.00
+ £62.50 Gift Aid
Brilliant achievement Bill. Very inspiring. Great to see you both at Rob’s wedding. Lots of Love x
Donation by Jess and Simon on 27/07/12
£50.00
+ £12.50 Gift Aid
WELL DONE WILL - WHAT A WONDERFUL ACHIEVEMENT AND WHAT AN AMAZING COMEBACK! LOTS OF LOVE, MILES, EIMEAR, LARRY AND MARIE X X
Donation by EIMEAR STRONG on 26/06/12
£50.00
Awesome effort Bill... Well done from Ian & SJ.
Donation by Ian Jones on 22/06/12
£50.00
Bill, Fantastic effort mate! Ed, Phil, Gemma and Matt.
Donation by Ed Daubeney on 20/06/12
£50.00
Well done!
Donation by Sus on 20/06/12
£50.00
Great work Billy! Hope to see you all some time soon.
Donation by Jennie Silkstone on 17/06/12
£20.00
+ £5.00 Gift Aid
Congratulations Willyam!
Donation by Guy Smart on 16/06/12
£25.00
+ £6.25 Gift Aid
Better late than never! Congratulations Billy on such an amazing achievement. Well done mate.
Donation by Jo and Ben on 16/06/12
£50.00
+ £12.50 Gift Aid
Sorry for the delay - our broadband was not working! Hope you reach for target.
Donation by john and leslie bryant on 15/06/12
£10.00
+ £2.50 Gift Aid
Well done Billy
Donation by Rebecca Eld on 15/06/12
Hey Will. Sorry it's taken me so long to sponsor you!! What an achievement considering what you've been through these last few years. Well done you!
Donation by Lucy Hall on 13/06/12
£20.00
+ £5.00 Gift Aid
Well done Will, I was so pleased that you made it successfully.
Donation by Nan Robertson (Dad's golf partner) on 11/06/12
£10.00
Well done Billy - great achievement.......Jersey Marathon?!?
Donation by Nick Waddington on 11/06/12
£20.00
+ £5.00 Gift Aid
Congratulations Bill on a fantastic achievement. Delighted to hear you are doing so well and c u in Jersey soon. Joanie and Jannes
Donation by Joanie & Jannes Helmholt-Kneisel on 10/06/12
£50.00
Donation by Malcolm West on 10/06/12
£25.00
+ £6.25 Gift Aid
Donation by Anonymous on 10/06/12
£25.00
Belated donation Billy but really impressed with your run. Barry & Beryl O'Driscoll
Donation by Barry O'Driscoll on 07/06/12
£20.00
+ £5.00 Gift Aid
Well done Will, I hope it went ok!
Donation by Mark Bryant on 04/06/12
£50.00
Donation by Anonymous on 04/06/12
£50.00
+ £12.50 Gift Aid
You are an inspiration, Will. Well done! Loral and Dom xx
Donation by Loral Courtney on 03/06/12
Donation by Kaushik & Sheetal Saujani(Kay's friends) on 02/06/12
£20.00
+ £5.00 Gift Aid
Bill. Awesome work mate. A truely magnificant effort! Happy birthday too! Can't wait to catch up with you again. Keep up the good work, what's next ?
Donation by Liam, Lyndsey & Evelyn on 02/06/12
£55.00
+ £13.75 Gift Aid
What an achievement! Awesome work mate, inspiring stuff!
Donation by GTih x The Killicks on 02/06/12
Donation by Joy MacNab on 02/06/12
£20.00
+ £5.00 Gift Aid
Donation summary
- * Online donations£7,690.00
- Offline donations£1,878.94
- Text donations£0.00
- Total raised£9,568.94
- Gift Aid£780.00
* Charities pay a small fee for our service. Find out how much it is and what we do for it.
