Molly is going to do a jump for every £1 donated! If you would love to leave in your comment a theme suggestion then she’ll do your jumps in that colour, brand, dress up where possible! The pandemic allowed Molly to stay healthy and during the first lockdown she learnt to walk and then jump! Now she jumps daily on the trampoline and in every puddle she sees! We are so thankful for her improved health since last year and she amazes us daily with all she achieves and works hard for. 

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Molly is 2 years old and was diagnosed with Cornelia de Lange Syndrome (CdLS) when she was 12 months old after a year of being in and out of hospital and lots of medical challenges. Molly’s gene change is RAD21 and only 1-2% of individuals with CdLS have this gene change and so a lot is unknown but the CdLS foundation have been amazing at guiding us through and connecting us with our families and supporting the wins and challenges of our journey. 

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Molly’s story of diagnosis started from a post I saw on social media and the image of the little boy and the information about CdLS just told me this was the underlying syndrome that Molly had. Without seeing this post, it might have been a lot longer before we had an idea on the syndrome that Molly had and how it linked to all her health concerns. Since her diagnosis we have pledged to raise awareness of CdLS whenever possible and be a support network for families throughout the world who are hearing the CdLS diagnosis for the first time. 

You can follow Molly’s story on Instagram @samsuedreams