Darren Deex

Darren's page

Fundraising for Spinal Muscular Atrophy (SMA) UK
£3,003
raised of £1,000 target
by 25 supporters
Donations cannot currently be made to this page
Event: Ironman Staffordshire 70.3, on 12 June 2016
In memory of Nelle Francis
Spinal Muscular Atrophy (SMA) UK

Verified by JustGiving

RCN 1106815
We offer support to families and individuals affected by SMA

Story

Thank you for visiting my JustGiving Page in memory of Nelle Francis.  

When the lads asked me to be part of Team Nelle and take part in the 2016 half ironman in Staffordshire I couldn't wait to get started. SMA is the leading genetic killer of infants and toddlers and yet few of us had heard of this awful condition before Nelle sadly passed away. Our aim is to train hard in memory of Nelle and to raise as much awareness of the condition and money for the charity as we can. The half ironman consists of a 1.2 mile swim, 56 mile bike and finishes with a 13.1 mile half marathon - this is a big personal challenge and one which I hope will inspire others to do the same.


If you’d like to make a donation to Spinal Muscular Atrophy Support UK I’d be very grateful, as it will help them offer support to families and individuals affected by SMA. Thank you.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

About the charity

Spinal Muscular Atrophy (SMA) UK

Verified by JustGiving

RCN 1106815
Spinal Muscular Atrophy UK is the charity for people affected by SMA. We provide emotional support for anyone affected by SMA and fund research related activities.

Donation summary

Total raised
£3,002.98
+ £65.75 Gift Aid
Online donations
£3,002.98
Offline donations
£0.00

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