<p>Thanks for taking the time to visit my JustGiving page.</p> <p>I have decided to enter the Great Eastern Run and have chosen the charity of LMBBS.&nbsp; My work colleague's daughter has&nbsp;<span class="uistorymessage">Bardet Biedl Syndrome (BBS) and&nbsp;she is only&nbsp;9 years old and this syndrome has already had a huge impact on her life.</span></p> <p><span style="color: #000000;">This is a rare genetic disorder, which can include visual impairment usually leading to blindness, kidney disease, obesity, learning difficulties and many other problems.<span style="font-family: Tahoma;">&nbsp; This little girl </span><span class="uistorymessage">is now registered blind due to her reduced visual field and&nbsp;has night blindness.<span style="font-family: Tahoma;">&nbsp; </span></span>She has to have cane training to help her mobility in dusk/dark evenings and will from now on have to have her kidneys regularly monitored to ensure they are healthy.</span></p> <p><span style="color: #333333;">The society is run by volunteers and relies on donations and fundraising to keep going with their vital work to help families who are affected by this syndrome.</span></p> <p><span style="color: #333333;">Thanks for your support.</span></p> <p>Heather&nbsp;</p> <p>So please dig deep and donate now.</p> <p>&nbsp;</p>