BBS UK

We support people with BBS to to understand their condition and thrive

Support us by donating or fundraising today - every contribution helps make a difference!

Charity Registration No. 1181244

admin@bbsuk.org.uk

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About us

We support people diagnosed with BBS, their parents, carers, and siblings as well as professionals involved in all aspects of the care and support of people with BBS in the UK. We are a user-led organisation, represented by adults with Bardet-Biedl Syndrome (BBS) and parents of children with BBS.

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