Story

Updated on Jan 9th 2013 at 12:23 AM from the JustGiving API

About 200,000 people in the UK have diagnosed AS. Here's an excellent BBC site which explains the condition a little more http://www.bbc.co.uk/health/physical_health/conditions/ankylosing1.shtml

What do all the following people have in common: Mick Mars, guitarist for Mötley Crüe; Vladimir Borisovich Kramnik, Russian world chess champion; Mike Atherton, English cricket player; Jens Stoltenberg, Prime Minister of Norway, and - not forgetting - lovely me!

We all have a condition called Ankylosing Spondylitis. Athletes, politicians, chess champions and rock gods - we can all get it. So on April 1st and 2nd 2013 I'm walking 50 miles to raise awareness, and to raise funds for research.

Ankylosing Spondylitis (AS) is often overlooked, but it is a type of arthritis which can start quite young - often between 15 and 35 years of age - and is three times more common in men than women.

AS is a type of chronic (long-term) arthritis that affects parts of the spine, including bones, muscles and ligaments.The condition can be severe, with around one in 10 people at risk of long-term disability. Often it's misdiagnosed - and that was the case with me.

So I'm walking 50 miles as I turn 50 years of age to raise awareness of AS, challenge my advancing years (regular excercise is good for AS), and raise some funds for research at the same time.

So, thanks for taking the time to visit my JustGiving page. Please donate whatever you can to NASS - the National Ankylosing Spondylitis Society - and help fund research into AS which will help others.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

Updates 2

£90 was money given to us for HUW'S 50@50 for NASS Joanna Irranca-Davies

22/04/13 09:41

The route for my 50 miles has now been posted on my Facebook site. Feel free to join me at any point.

18/03/13 23:55

Raising money for

National Ankylosing Spondylitis Society

National Ankylosing Spondylitis Society

Charity Registration No. 272258

NASS is the patient organisation for people with ankylosing spondylitis (AS) which is a painful progressive rheumatic disease which mainly affects the spine. We provide advice, support and information for patients and their families and run over 100 local branches in the UK.

Donations 73

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Da iawn Huw! This donation also recognises the commitment to the cause by my lovely sister Ruth Miller.

Donation by Elizabeth Jenkins, Carmarthen on 07/04/13

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Donation by derek vaughan on 07/04/13

£20.00

+ £5.00 Gift Aid

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Well done Huw and Jo! It was lovely to meet you at the end of your epic walk. This donation is from my mother Susan Schorah, from sunny Ceredigion.

Donation by ruth miller on 05/04/13

£30.00

+ £7.50 Gift Aid

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Congrats Huw. I'm glad it went without a hitch (even if it was unseasonably cold!) Here's to your next walk, the length of the Wales Coastal Path?

Donation by Dale Stolzenberg on 05/04/13

£20.00

+ £5.00 Gift Aid

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Well done Huw and all your supporters.You've reached your target. and for a well-deserving cause too. What will you do when you're 60?

Donation by Linda and Tony Hales on 05/04/13

£50.00

+ £12.50 Gift Aid

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Donation by Anonymous on 02/04/13

£10.00

+ £2.50 Gift Aid

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Well done from a fellow sufferer.

Donation by Tony Stephens on 02/04/13

£10.00

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Well done with 50 at 50... You must be very pleased with how much you've raised!

Donation by Helen Green on 01/04/13

£10.00

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Well done on reaching halfway. Good luck for tomorrow.

Donation by Tim Cahalane on 01/04/13

£20.00

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Donation by John Spanswick on 01/04/13

£10.00

+ £2.50 Gift Aid

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Llongyfarchidau Huw - still think it is a ruse to get fit for the tennis season!

Donation by Robert Evans on 01/04/13

£10.00

+ £2.50 Gift Aid

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Donation by Anonymous on 31/03/13

£20.00

+ £5.00 Gift Aid

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Donation by Anonymous on 31/03/13

£145.00

Donation by Jean Lediard on 31/03/13

£10.00

+ £2.50 Gift Aid

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Donation by Ruth Whelan on 31/03/13

£10.00

+ £2.50 Gift Aid

Donation by Ross Thomas on 31/03/13

£10.00

+ £2.50 Gift Aid

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Donation by Barbara Reynolds on 30/03/13

£10.00

+ £2.50 Gift Aid

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just found out this is what my friends brother suffers from :( good luck with your walk.

Donation by dianewoods on 30/03/13

£5.00

+ £1.25 Gift Aid

Donation by Jayne Walter on 29/03/13

£10.00

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Donation by Anonymous on 29/03/13

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Good luck for a very worthy cause. I can recommend wainwright's coast to coast ....

Donation by Andy Davey on 28/03/13

£20.00

+ £5.00 Gift Aid

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Donation by Ceri-Ann Morgan on 28/03/13

£10.00

+ £2.50 Gift Aid

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Great to see people with AS standing up for others. Thanks for showing people with AS have the physical capacity to make a great contribution

Donation by Lesley Kay on 28/03/13

£10.00

+ £2.50 Gift Aid

Well done Huw, good luck with your target, this is just how an MP can use their time and efforts for good. All the best, Luke

Donation by Luke Ellis on 28/03/13

£10.00

+ £2.50 Gift Aid

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Good Luck.

Donation by Andrew Mitchell on 28/03/13

£10.00

Donation summary

  • * Online donations£1,220.00
  • Offline donations£180.00
  • Text donations£0.00
  • Total raised£1,400.00
  • Gift Aid£230.00

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