Ashlee & James Lo

Help more AADC kids to get Gene Therapy just like Alex!

Fundraising for The AADC Research Trust
US$1,575
raised of US$1,000 target
by 16 supporters
Teddy Wears BLUE for AADC Awareness Campaign : 27th May - 2nd June 2019. Join us in raising Funds and Awareness about our ultra RARE Brain Disease. Wear BLUE for AADC deficiency and DONATE to our cause "making a rare child healthy".

Story

3rd ANNUAL Teddy Wears BLUE for AADCd Awareness Campaign 2019 : The Gene Therapy Story This year sees our 3rd ANNUAL Teddy Wears BLUE for AADCd Awareness Campaign, dedicated to those children who are struggling every day living with the ultra RARE brain disease; Aromatic Amino Acid Decarboxylase deficiency (AADC / AADCd). In 2019 we are focusing our Awareness Campaign on the pioneering Gene Therapy treatment, received by our AADCd children. Gene Therapy is complex brain surgery that has disease limiting and life changing results. ALL funds raised by this campaign will be set aside to help families struggling with the off-treatment costs incurred whilst visiting a treatment centre that may be many miles away. NO child should ever be excluded due to geographical or financial difficulties. The Trust ADVOCATES on behalf of every CHILD in every country!

About the campaign

Teddy Wears BLUE for AADC Awareness Campaign : 27th May - 2nd June 2019. Join us in raising Funds and Awareness about our ultra RARE Brain Disease. Wear BLUE for AADC deficiency and DONATE to our cause "making a rare child healthy".

About the charity

The AADC Research Trust

Verified by JustGiving

RCN 1114367
AADC deficiency is a rare disabling brain disease. More than 100 children in 30 countries have been identified with the disease. It's proved fatal for some of them. The AADC Research Trust is a children's charity funding research, supporting affected families and promoting global disease awareness.

Donation summary

Total raised
US$1,575.00
Online donations
US$1,575.00
Offline donations
US$0.00

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