3rd ANNUAL Teddy Wears BLUE for AADCd Awareness Campaign 2019 : The Gene Therapy Story
This year sees our 3rd ANNUAL Teddy Wears BLUE for AADCd Awareness Campaign, dedicated to those children who are struggling every day living with the ultra RARE brain disease; Aromatic Amino Acid Decarboxylase deficiency (AADC / AADCd).
In 2019 we are focusing our Awareness Campaign on the pioneering Gene Therapy treatment, received by our AADCd children.
Gene Therapy is complex brain surgery that has disease limiting and life changing results.
ALL funds raised by this campaign will be set aside to help families struggling with the off-treatment costs incurred whilst visiting a treatment centre that may be many miles away.
NO child should ever be excluded due to geographical or financial difficulties.
The Trust ADVOCATES on behalf of every CHILD in every country!