Jessica Johnson

Jessica's on going fundraising

Fundraising for Ehlers-Danlos Support UK
£8,377
raised
by 51 supporters
Ehlers-Danlos Support UK

Verified by JustGiving

RCN 1157027
We educate, inform and raise awareness to support those living with Ehlers-Danlos

Story

Thanks for taking the time to visit my JustGiving page.

My name is Jessica I am 9 years old and suffer from a condition called EDS - Ehlers Danlos Syndrome. There is no cure for my condition it is caused by faulty collagen in the body and as collagen is throughout the whole off our body it can affect any part of my body or organs at anytime. Currently I suffer constant pain throughout my body, dislocate my joints, have a curve in my back so wear a permanent spinal brace and my stomach has stopped working properly so I am fed overnight through a mic-key tube in my stomach. I also have poorly functioning lungs. I would be grateful if you could help me raise as much money as possible for this charity so they can continue the work they do into research and supporting people like me who suffer with the condition.


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About the charity

Ehlers-Danlos Support UK

Verified by JustGiving

RCN 1157027
Ehlers-Danlos Support UK improves quality of life for people living with the Ehlers-Danlos syndromes (EDS). We work across the UK to support, advise and inform those living with the condition and the medical professionals working with them.

Donation summary

Total raised
£8,377.00
+ £183.00 Gift Aid
Online donations
£8,377.00
Offline donations
£0.00

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