Raised so far: £10.00
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Thanks for taking the time to visit my JustGiving page.

This fundraiser is in honour of my sons, who in 2002 were born sleeping at 32 weeks, diagnosed with a rare condition called MICROCEPHALY. 

The staff at Sharoe Green maternity, University College Hospital Fetal Medicine Unit, Manchester St Mary's Fetal Medicine and Sheffield University did all they could to try to help save my boys and as such feel I would like to try and give something back to them and to all future mothers in my position, knowing they may never hold their live children and undergoing every test available to them, to have a bit of hope.

Without the cash, the research and equipment cant be bought, so if anyone who looks at this page can find it in their heart to donate a single pence, it would be gratefully recieved.

I had a team of cardiologists,neurosurgeons and professors looking into my case, all trying to figure out how severely the MICROCEPHALY had a hold on my twins. I had researchers and pioneering MRI scans done in an attempt to undertsand more about what was going on with them. Top doctors had no clue why the boys brains were smooth, after every test for every disease, every syndrome studied, from CMV (Cytomeglavirus) to Toxomasplosis, from Herpes to Chromosone and Genetic testing, there was no prognosis other than death. These people and tests cost ALOT of money and Im pretty sure every knows someone who has had to have some kind of extra testing in pregnancy if not babies born sleeping.

I will never forget a particular midwife named Liz, who after my sons were born asleep took me for a bath. I had my bath and as I walked up the corridor of the delivery suite, listening tot he new cries of live children being born, my attention focused on the door of the room where I had just delivered my beautiful identical little soldiers..

I could hear Liz speaking softly to someone, telling them how pretty they were. As I stood in the doorway she was dressing Deven, gently cradling his head as if he would wake up and cry if she disturbed him. Dion was wrapped in the blue blanket I had bought for him and lying in his crib at the side of the bed, cleaned and dressed, even wearing the little guardian angel my mum had bought for him..

She was my light at that moment, she was going above what was expected of her as a midwife, she was caring for my dead children...and I came back from my bath to my sleeping children..

These people cost money and they need funds!

For this and for those future mothers/fathers and families who have to suffer the pain of illness,death and tragedy surrounding what should be the happiest time for them, I want to help raise money for fetal medicine and research and for the equipment needed to perhaps save one of these babies lives...this is more in need now with the new NHS cuts!!!!

There is no treatment for microcephaly that can return a child's head to a normal size or shape. Treatment focuses on ways to decrease the impact of the associated deformities and neurological disabilities. A small group of researchers studying a rare neurometabolic syndrome (3-PGDH), which causes microcephaly, have successfully used amino acid replacement therapy to reduce and prevent seizures.And with our help perhaps they can find more researchers and more impact can be made to save children in the future.

VARIOUS NEWSPAPERS ACROSS THE UK HAVE AGREED TO DO ARTICLES IN TIME FOR 30TH SEPTEMBER (Microcephaly Awareness Day)  IN THE QUEST TO RAISE AWARENESS.

THE LANCASHIRE EVENING POST HAS AGREED TO COVER THE STORY FOR OUR COUNTY & I INTEND ON GETTING THE LOCAL SCHOOLS TO ALLOW A WEAR YELLOW FOR MICROCEPHALY DAY FUNDRAISER, WITH MONIES RAISED BEING DONATED TO  BABYLIFELINE.

 

ALL MONIES RAISED WILL BE ATTRIBUTED TO THIS ACCOUNT AND WILL GO DIRECTLY TO BABYLIFELINE.

 

Remember this isnt just for kids with microcephaly-this is for all families who ever need specialist care in cases where pregnancy hasn gone quite according to plan.

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x Donation by Julie Williams on 24/08/09

 
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Donation by Clare Mainwaring on 24/08/09

 
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* Total raised online: £10.00
  Offline donations: £0.00
  Mobile donations: £0.00
  Total Raised: £10.00
  Gift Aid plus supplement: £0.00

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