My son was diagnosed with mitochondrial disease at 4 months old, having crashed twice and on a ventilator for two weeks. We were told at this time that it's life-limiting, there is no cure for this disease and we'd be lucky to have him for one more month. What we do know about the disease has helped with his medicines and we have celebrated his second Christmas and are looking forward to his second birthday. I am raising money, along with my awesome buddies, for the lily foundation to help other people who are told 'we don't know' or 'there is no cure' to be strong and to help to find a cure.

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.

Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.

Please stand with us and fight Mitochondrial Disease and fight for hope.